Find Medically Complex Experienced Medical Doctors and Clinics
We have collected recommendations and researched key providers for individuals with medically complex needs. These doctors and clinics are recommended be members of our MCC community and are highly regarded. If you are looking for a specialist or clinic that could meet your needs, please search out database.
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Doctors and Clinics
Fragile X
Maryland
Clinic
FMR1 and Related Conditions Clinic at Kennedy Krieger
888.554.2080
Baltimore
Provides a comprehensive array of testing and evaluation services for children and adults with Fragile X syndrome and Fragile X-Associated Disorders (FXD), as well as provide referral services as necessary. The clinic is a founding member of the Fragile X Clinical and Research Consortium (FXCRC), the network of Fragile X clinics in North America.
Genetic Muscle Disorders
Maryland
Clinic
Center for Genetic Muscle Disorders at Kennedy Krieger
888.554.2080
Baltimore
Provides current interdisciplinary clinical care for patients by experts in muscle disease, while leading research programs to develop better and novel therapeutics to treat these disorders in the future. To accomplish these objectives, the Center has three arms: clinical care, clinical research and laboratory research.
Hematology/Oncology
Infectious Disease
Leukodystrophies
Maryland
Clinic
Moser Center for Leukodystrophies at Kennedy Krieger
443.923.2750
Baltimore
Provides comprehensive care to patients with leukodystrophies through an interdisciplinary approach, bringing together the fields of neurogenetics, genetic counseling, neurorehabilitation, endocrinology, and urology, along with physical, occupational, speech, and aquatic therapy
Neonatology
Neurodevelopmental Disorders (SYNGAP1, SHANK 3, GABRB, STXBP1, GRIN, GRIA, KCN, SCN and the SLC family of genes)
Maryland
Clinic
Synaptopathies Clinic at Kennedy Krieger
443.923.2778
Baltimore
Expert care for children with developmental challenges related to changes in several synaptic genes (SYNGAP1, SHANK 3, GABRB, STXBP1, GRIN, GRIA, KCN, SCN and the SLC family of genes). Symptoms may include global developmental delays, intellectual disability, autism spectrum disorder, sensory processing difficulties, disruptive behaviors and epilepsy.